Portsmouth
Down Syndrome
Association

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Becky Baxter – speech, language and development support

LETS Go! offers a comprehensive range of services developed to support children, families and professionals covering a variety of speech, language and developmental needs.

www.letsgouk.org/


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Blue Badge Parking Scheme

The Blue Badge scheme is for people with severe mobility problems. It allows Blue Badge holders to park close to where they need to go. The scheme operates throughout the UK and is managed by local authorities, who deal with applications and issue Blue Badges.

www.gov.uk/blue-badge-scheme-information-council


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Disability Benefit Advice from Direct Gov

Disability Living Allowance; Employment and Support Allowance; Incapacity Benefit; Constant Attendance Allowance; Industrial Injuries Disablement Benefit (diseases and deafness); Disabled Facilities Grants; The Independent Living Fund; Medical costs for war pensioners; Vaccine Damage Payment; Attendance Allowance; Direct payments for care and services; Benefits if you are ill or disabled – changes you need to know about; Disabled Students’ Allowances (disabled people section); Community Care Grants; Industrial Injuries Disablement Benefit (accidents); Blue Badge parking scheme (disabled people section); War Disablement Pension; Severe Disablement Allowance

www.gov.uk/browse/benefits


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Disability Grants – A guide to grants for the disabled

My work at The National Star College made me see first hand how young people benefited and the quality of their life improved when given the correct resources and equipment. “Not enough money” was often the reason why these young people had not received these services or essential items in the past. Frustrated by the lack of accessible information on grants for these students and other disabled people I set myself the challenge to create this website.

www.disability-grants.org/

 


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Disability Registration in Hants (yellow card)

This card is a quick and easy way of proving that the holder has a significant disability and needs to use facilities provided for disabled people. Being registered as disabled is voluntary and is not a requirement for Adult Services eligibility, nor does registration mean that you will be eligible for Adult Services support.

www3.hants.gov.uk/register


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DotComUnity – disability directory for activites and services in your area

We currently have an incredible 69000+ events and activities listed across the UK! But that is only a tiny fraction of what we will have in due course as more and more providers and activities are added daily.

www.dotcomunity.co.uk/


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Down Syndrome Education International

Down Syndrome Education International is a leading international charity dedicated to raising levels of educational achievement among children with Down syndrome. We have been at the forefront of developmental and educational research and evidence-based services improving outcomes for children with Down syndrome for over 30 years.

www.dseinternational.org/en-us/


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Downs Heart Group

a charity offering support and information relating to heart conditions associated with Down’s Syndrome. We hope you find the content useful, however, this is only part of the specialised help available to parents and professionals, including: one to one support telephone helpline newsletters The Group aims to provide unbiased, up to date facts, thus enabling individuals to make informed choices.

www.dhg.org.uk/


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Down’s Syndrome Association

We are the only organisation in this country focusing solely on all aspects of living successfully with Down’s syndrome. Since 1970, we have grown from being a local parent support group to a national charity with over 20,000 members, a national office in Teddington Middlesex, offices in Northern Ireland and Wales. Despite this, the organisation is run by a total staff of only 33 (many of them part time), and a network of around 126 regional volunteer-led support groups.

www.downs-syndrome.org.uk/


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IPSEA

IPSEA is a registered charity offering free and independent advice to parents of children with special educational needs in England and Wales on:
local authorities’ legal duties to assess and provide for children with special educational needs;
exclusions of children with special needs/disabilities;
actions or inaction by local authorities and/or schools which discriminate against children with disabilities.

www.ipsea.org.uk/


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Mencap

We work in partnership with people with a learning disability, and all our services support people to live life as they choose. Our work includes: providing high-quality, flexible services that allow people to live as independently as possible in a place they choose providing advice through our helplines and websites campaigning for the changes that people with a learning disability want. We have strong relations with a local network of more than 500 affiliated groups. Our local groups are individual charities in their own right, but we work closely with them to ensure people with a learning disability and their families have support locally as well as nationally.

www.mencap.org.uk/


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NHS Choices – Carers Direct – NHS Information, Advice and Support for Carers

Carers Direct is the official website designed to help you get the help and support you need as a carer. We offer all the information you should need to get the financial help you’re entitled to, as well as advice on getting a break from caring, going to work and much more.

www.nhs.uk/carersdirect/Pages/CarersDirectHome.aspx


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Portsmouth Enable Ability

Portsmouth Enable Ability was established as an independent charity for care, welfare and advancement of disabled people in Portsmouth and the surrounding area. We work in partnership with disabled children and adults, their families and carers, to provide a range of high quality, professional and confidential services.

www.enableability.org.uk/


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Portsmouth Parent Partnership

Advice and support for parents and carers in Portsmouth. The Portsmouth Parent Partnership Service offers parents and carers living in the PO1–PO6 area free, confidential and impartial information and advice about their child’s Special Educational Needs (SEN).

www.askportsmouth.org/


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Portsmouth Parent Voice

Parent Voice is a Hampshire wide network of parents and carers of children and young people with additional needs aged 0-19. Parent Voice provides local information and advice through its weekly updates, newsletter, website and Parent Participation Officers. Through The Parent Voice Forum, parent representatives from across Hampshire are developing a participation network that will bring together the knowledge and experience of all new and established parent groups into one channel of influence.

www.portsmouthparentvoice.org/


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SOS!SEN – help and advice for SEN

We offer a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs (SEN). We concentrate on helping people to find their way through the legal and procedural maze which is so daunting to so many who try to obtain satisfactory provision for a child’s special needs. Our aim is to empower parents and carers, and to encourage them to become sufficiently confident to tackle for themselves the obstacles and difficulties that arise in battling for SEN rights. In turn, we hope they will use their knowledge and experience to help others.

www.sossen.org.uk/


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Special Kids in the UK – offering friendship and support

Special Kids in the UK is a member based charity offering contact, information and support for families of children and young people with special needs throughout the United Kingdom. Special Needs covers a broad spectrum including learning, physical and behavioural difficulties.

http://www.specialkidsintheuk.org/


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Speech picture resources – free pictures to aid speech practice

A useful site for picture resources and activity sheets to aid speech practice and developmental activities. Click on links, click on wordlists or worksheets, and scroll down for specific sounds.

www.speech-language-therapy.com/


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The Maritime Brass Ensemble

This is a local group of musicians led by Graham Brown who has helped in our fundraising activities with the Portsmouth Grammar School Junior School Brass Band. The Maritime Brass Ensemble is one of Graham’s professional outfits who are always in demand for parties and weddings. Graham also acts as a booking agent for a variety of other local musicians.

www.maritime-brass.co.uk/

  • Social opportunities for our families to come together, make friends and share experiences
  • A wide range of specialist educational services including Communication Therapy, Early Intervention Groups, a School Outreach Service and Drama Groups for members

Portsmouth DSA Provides:

  • Information and training days for parents and related professionals
  • Up-to-date information and advice about all aspects of Down syndrome
  • Access to our information lending library
  • A very warm welcome and guidance for new parents

Charity Patrons: Professor Sue Buckley OBE, world leading expert in education and development for children with Down syndrome, and renowned Chief Scientist for Down Syndrome Education International. Emma Barton, actress and performer. Scott Heffield, adventurer and TV presenter. Tim Treloar, adventurer and TV presenter.

Portsmouth Rugby Club supports Portsmouth DSA.

Portsmouth DSA is a registered charity, number 1147355

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